Thoughts
To begin... Emma is fine. Onto the the thoughts...
Over the past couple weeks Emma has had a rough ride. Since her surgery she has not been able to shake her lung problems. This has been pinacled by her problems last weekend. As I mentioned before, Emma was doing better. However, she had another spell this morning, although not near as bad as this weekend. The doctors increased her ventilator rate and pressure, and Emma has since stablized. That doesn't mean it didn't scare us pretty badly though.
Emma's doctors are still stumped as to what is causing her lung problems. They have discussed a number of potential causes, from pnemonia to excess water in the lungs to her lungs being tired to just about anything else. Unfortunately, all we can do is take it one day at a time. Emma's doctors have told us that the best cure for Emma's lungs are growth and rest. While I don't think I can say that this has been the worse month of my life, it has been definitely one of the most stressful for both Liz and I.
That being said, it is easy to not pay attention to the rest of the outside world. Over the past couple weeks there have been some new additions to the special care nursery, and given that we are up there for "seniority" as far as parents go, we have spent time talking w/ the newer parents about our time, our struggles, and what we have to look forward to (note... we still do the same w/ the parents that have been there longer than us... it's pretty helpful and reassuring).
As a result of our conversations with newer parents my eyes have "reopened" to the rest of the world in a way. It is very easy for me to get involved in what is going on w/ Liz, Emma and I and to shutout the rest of the world. I have started to"remember" (for the lack of a better word) that everyone has a lot going on in there life, both good and bad. Whether it be a wedding, or a friend fighting cancer, someone's parents struggling with a medical problem, old age, new children coming into the world, someone taking steps to take back their life from an affliction or any other event, people do persevere. I get strength in knowing that. So, for everyone out there, know that we appreciate your thoughts, emails and prayers. And we are thinking of you and your family, and hope everything turns out for the best.
Mom and Emma...
Awake!
Asleep... but look how much hair I have!
Emma's hand v. Liz's hand
Family Photo
Over the past couple weeks Emma has had a rough ride. Since her surgery she has not been able to shake her lung problems. This has been pinacled by her problems last weekend. As I mentioned before, Emma was doing better. However, she had another spell this morning, although not near as bad as this weekend. The doctors increased her ventilator rate and pressure, and Emma has since stablized. That doesn't mean it didn't scare us pretty badly though.
Emma's doctors are still stumped as to what is causing her lung problems. They have discussed a number of potential causes, from pnemonia to excess water in the lungs to her lungs being tired to just about anything else. Unfortunately, all we can do is take it one day at a time. Emma's doctors have told us that the best cure for Emma's lungs are growth and rest. While I don't think I can say that this has been the worse month of my life, it has been definitely one of the most stressful for both Liz and I.
That being said, it is easy to not pay attention to the rest of the outside world. Over the past couple weeks there have been some new additions to the special care nursery, and given that we are up there for "seniority" as far as parents go, we have spent time talking w/ the newer parents about our time, our struggles, and what we have to look forward to (note... we still do the same w/ the parents that have been there longer than us... it's pretty helpful and reassuring).
As a result of our conversations with newer parents my eyes have "reopened" to the rest of the world in a way. It is very easy for me to get involved in what is going on w/ Liz, Emma and I and to shutout the rest of the world. I have started to"remember" (for the lack of a better word) that everyone has a lot going on in there life, both good and bad. Whether it be a wedding, or a friend fighting cancer, someone's parents struggling with a medical problem, old age, new children coming into the world, someone taking steps to take back their life from an affliction or any other event, people do persevere. I get strength in knowing that. So, for everyone out there, know that we appreciate your thoughts, emails and prayers. And we are thinking of you and your family, and hope everything turns out for the best.
Mom and Emma...
Awake!
Asleep... but look how much hair I have!
Emma's hand v. Liz's hand
Family Photo
posted by Chadwick at 10:31 AM
3 Comments:
what an emotional rollercoaster this has been for you both. you are lucky to have such a great support system, many people don't. emma looks bigger and stronger with each post. it is fun to see her grow. hopefully this next week will be a smoother one and her lungs will continue to improve.
Chad and Liz: I check your blog every day so I know better how to pray. I love the pictures and admire you both so much! Your strength, your taking the time to let the rest of us into "your world". Chad, you are a wonderful man! I am getting to know you through your blog and I am thankful for you in the life of your two gals!
Liz: what a cheer leader you are and your strength is apparent as you go through this most difficult time.
Emma: you just keep fighting. We're all cheering for you!
Our love,
Robb and Diane
Good morning Sullivan Family,
Hi. We love all the new pictures and we figured out how to print them from the blog, so we have your family and one of just Emma on the fridge. We pray for all of you throughout each day. Isaiah loves to look at pictures and points up at Emma regularly. We tell him about his cousin and include him in some of our prayer times for Emma's lungs. We are excited that Emma has doubled her birth weight. Good job young lady!! Chad, thanks for taking the time to blog. We love hearing about Emma's antics. Liz, are you feeding Emma cream? Way to go mommy! We love you all.
~Jenny
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